The primary objective of the charity is to advance knowledge through research and to relieve sickness by the promotion and support of scientific clinical and transplant research in Yorkshire to benefit children and adults suffering from kidney disease.
The charity achieves its objectives by issuing grants to promote or carry out research and publishing and distributing information.
The main objectives are the promotion of the charity and the raising of the public’s awareness as to activities of the charity.
The strategies employed to achieve the charity’s objectives are:
- Issuing grants to projects involved in renal research
- Publishing and distributing half yearly newsletters which give up to date information about the charity and news of the latest developments in kidney research
- Promoting fundraising and other social activities to raise money to fund research
- Holding social and other events to promote the charity
The Charity is managed by a single part time administrator and a small team on volunteer trustees
Research we're currently
to understand how a usually benign virus attacks kidney transplants and stops them working and looking for new treatments for this currently untreatable condition
understanding how patients with kidney disease develop heart problems without even knowing it
understanding how specific cells of the immune system (transitional B cells) are found in the blood of people with kidney transplants in different amounts, and the number of cells seems to associate with how long the transplant lasts. This could ultimately lead to personalised treatment – ie different immunosuppression medications given to different patients according to the number of these cells found in their blood.
We also handle bequests for the benefit of kidney patients – a current project includes Mary Strang Legacy. This has funded three members of staff for key roles at Leeds General Infirmary, supporting children who’s lives are effected by kidney disease :
- A Clinical Nurse Educator
- Clinical Psychologist
- Clinical Nurse
You can read an update on this project here
won a NHS Innovation Award for improving anemia treatment for renal patients – the service in Leeds developed a computer algorithm for treatment of this condition which afflicts 95% of kidney disease sufferers and the approach is now the gold standard of all Renal Units in the UK!
Identify renal transplants in the early stages post implant which might need additional treatment to make them last longer
understand how long term dialysis leads to deposition of a protein (dialysis amyloid) in patients joints leading to a painful and debilitating arthritis and develop methods of how to disperse it
scanning babies’ kidneys among a birth cohort in Bradford (part of the ‘Born in Bradford’ study) to understand how patients kidneys develop in childhood in health and disease. More information here – extracted from the March 2016 Kidney Research Yorkshire Newsletter.
identify a better way of preventing infections on the lines that people use to dialyse
identify new subsets of immune cells which attack the kidney transplant and find ways to deal with them more effectively